Find a Doctor | NF Collective

Finding a Healthcare Professional

The neurofibromatoses, including NF1, NF2 and schwannomatosis, are progressive, lifelong conditions requiring long-term follow-up and management. Finding experienced healthcare professionals to oversee the care of someone with neurofibromatosis or schwannomatosis is the most important thing you can do for yourself or your loved one.

The organizations of the NF Collective have worked together to provide a list of NF providers. This site provides you with clinics and specialists who have been identified as experienced in diagnosing and caring for individuals with NF. Although we cannot guarantee the quality of care received, we hope that this resource is of great benefit to the NF Community.

If you need help choosing a specialist from this list, finding a specialist close to you, or wish to recommend a specialist to add to our listing, please contact us.

If you are an NF provider and would like to be included in this listing, please fill out the Request Form and a member of the NF Collective will be in touch.

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Provider	Clinic Director(s)	Ages	NF Types
University of Alabama at Birmingham UAB NF Clinic Birmingham, AL United States	Bruce Korf, MD, PhD and Laura Metrock, MD	Pediatric, Adult	NF1 NF2 Schwannomatosis
Arkansas Children’s Hospital Neuroscience Center Little Rock, AR United States	Elizabeth Sellars, MD	Pediatric, Adult	NF1 NF2 Schwannomatosis
Mayo Clinic Arizona Clinical Genomics Phoenix, AZ United States	Radhika Dhamija, MD, Geneticist/Neurologist; Maciej Mrugala, MD, PhD, Neurologist	Pediatric, Adult	NF1 NF2 Schwannomatosis
Phoenix Children's Hospital Barrow Neurological Institute Phoenix, AZ United States	Radhika Dhamija, MD, Geneticist and Neurologist	Pediatric	NF1 NF2 Schwannomatosis
Children's Hospital of Los Angeles Comprehensive Neurofibromatosis Clinic Los Angeles, CA United States	Tena Rosser, MD	Pediatric, Adult	NF1 NF2 Schwannomatosis
University of California, Los Angeles - UCLA UCLA Multidisciplinary NF2 Clinic Los Angeles, CA United States	Phioanh Leia Nghiemphu, MD and Marco Giovannini, MD, PhD	Pediatric, Adult	NF1 NF2 Schwannomatosis
House Clinic NF Clinic Los Angeles, CA United States	Gregory Lekovic, MD, PhD and William Slattery III, MD	Pediatric, Adult	NF1 NF2 Schwannomatosis
Cedars-Sinai Medical Genetics - Neurology Department Los Angeles, CA United States	John M. Graham, MD, Medical Genetics; Jethro L. Hu, MD, Neurology; Robert M. Bernstein, MD, Orthopedics; Fataneh Majlessipour, MD, Peds/Hematology/Oncology; Pedro Sanchez, MD, Director of Medical Genetics, (310) 423-7779 for appointments and (310) 614-3071	Pediatric, Adult	NF1 NF2
Children's Hospital of Orange County CHOC Children’s Neurofibromatosis Program Orange, CA United States	Neda Zadeh, MD, FAAP, FACMG	Pediatric, Adult	NF1 NF2 Schwannomatosis
Stanford/Lucile Packard Children's Hospital Stanford Children's Neurofibromatosis Clinic Palo Alto, CA United States	Cynthia Campen, MD and David Stevenson, MD	Pediatric, Adult	NF1 NF2 Schwannomatosis
Lucille Packard Children's Hospital (Stanford) LPCH Pediatric Neurosurgery Palo Alto, CA United States	Gerald Grant, MD, Division Chief of Pediatric Neurosurgery; David S. Hong, MD, specialty pediatric spinal disorders.	Pediatric	NF1 NF2
Stanford Children's Health RASopathy/Neurofibromatosis Genetic Clinic Palo Alto, CA United States	Cynthia Campen, MD; David A. Stevenson, MD; Ellyn Farrely, Genetic Counselor	Pediatric	NF1 NF2 Schwannomatosis
Stanford Health Center Stanford Neuroscience Health Center Palo Alto, CA United States	Jacinda Sampson, Neurogeneticist; Jon Park, MD, Spine neurosurgeon; John Ratliff, MD, Spine neurosurgeon; Lawrence Shuer, MD, Neurosurgeon; Juan C. Fernandez-Miranda, MD, Neurosurgeon; Steven D. Chang, MD, Neurosurgeon; Y. Joyc Liao, MD, PhD, Neuro-ophthal	Adult	NF1 NF2
UC Davis Health MIND Institute - NF/Ras Pathway Clinic Sacramento, CA United States	Katherine Rauen, MD, PhD	Pediatric, Adult	NF1 NF2 Schwannomatosis
UCSF Benioff Children's Hospital UCSF Neurofibromatosis Program San Francisco, CA United States	Alyssa Reddy, MD	Pediatric	NF1 NF2 Schwannomatosis
Children's Hospital Colorado Neurofibromatosis Program Aurora, CO United States	Jessica Win, MD; Aaina Kochhar, MD; Jennifer Janusz, PsyD, ABPP-Cn	Pediatric	NF1 NF2 Schwannomatosis
Connecticut Children's Medical Center Neurofibromatosis Clinic Farmington, CT United States	Francis DiMario Jr., MD	Pediatric	NF1 NF2 Schwannomatosis
Children’s National Hospital Jennifer and Daniel Gilbert NF Institute Washington, DC United States	Miriam Bornhorst, MD	Pediatric, Adult	NF1 NF2
Nemours/Alfred I. duPont Hospital for Children Nemours RASopathy & Neurofibromatosis Clinic Wilmington, DE United States	Karen Gripp, MD	Pediatric, Adult	NF1 NF2 Schwannomatosis
University of Florida/Shands Neurofibromatosis Clinic Gainesville, FL United States	Hans Shuhaiber, MD; Ashley Ghiaseddin MD; and Margaret Wallace Ph.D.	Pediatric, Adult	NF1 NF2 Schwannomatosis
NeuroMedicine Hospital UF Neurofibromatosis and Neurocutaneous Center Gainesville, FL United States	Hans Shuhaiber, MD and Ashley Ghiaseddin, MD	Pediatric, Adult	NF1 NF2 Schwannomatosis
Nicklaus Children’s Hospital Neurofibromatosis Center Miami, FL United States	Mislen Bauer, MD	Pediatric, Adult	NF1 NF2 Schwannomatosis
Miami Cancer Institute Miami Cancer Institute Neurofibromatosis Center Miami, FL United States	Alexander Mohler, MD and Matthew Hall, MD	Adult	NF1 NF2 Schwannomatosis
AdventHealth for Children Neurofibromatosis Clinic Orlando, FL United States	Fouad Hajjar, MD	Pediatric	NF1 NF2
Johns Hopkins All Children’s Hospital Neurocutaneous Disorders Clinic St. Petersburg, FL United States	Stacie Stapleton, MD and Melissa Crenshaw, MD	Pediatric, Adult	NF1 NF2 Schwannomatosis
Moffitt Cancer Center Moffitt Genetic Neuro-oncology Clinic Tampa, FL United States	Sepideh Mokhtari, MD, Nam Tran M.D., Ph.D., and Joseph Kissil Ph.D.	Adult	NF1 NF2 Schwannomatosis
Emory University/Children's Healthcare of Atlanta Neurofibromatosis Clinic Atlanta, GA United States	David Wolf, MD, PhD; Prabhu Patil, MD	Pediatric, Adult	NF1 NF2 Schwannomatosis
Augusta University Health; Children's Hospital of Georgia Georgia Neurofibromatosis Clinic Augusta, GA	John W. Henson, MD and Suzanne Strickland, MD	Pediatric, Adult	NF1 NF2 Schwannomatosis
University of Iowa Hospitals and Clinics Neurofibromatosis Clinic Iowa City, IA United States	Alpa Sidhu, MD, PhD (Director)	Pediatric, Adult	NF1 NF2 Schwannomatosis
Ann and Robert H. Lurie Children’s Hospital of Chicago Neurofibromatosis Clinic Chicago, IL United States	Co-Directors - Robert Listernick, MD; Carlos Prada, MD; Miriam Bornhorst, MD; Opthamologist Janice Lasky-Zeid, MD	Pediatric, Adult	NF1 NF2 Schwannomatosis
University of Chicago - Chicago Neurofibromatosis Program Chicago, IL United States	James Tonsgard, MD	Pediatric, Adult	NF1 NF2 Schwannomatosis
University of Illinois in Chicago Neurofibromatosis Clinic Chicago, IL United States	Nikolas Mata-Machado, MD (children) and Stefania Maraka, MD (adults); Opthamologist - Lawrence Kaufman, MD, PhD	Pediatric, Adult	NF1 NF2
Malnati Brain Tumor Institute-Northwestern Memorial Hospital Neuro Oncology & Neurology Chicago, IL UNITED STATES	Karan Dixit, MD	Adult	NF1 NF2 Schwannomatosis
University of Chicago - Orland Park Neurofibromatosis Program Orland Park, IL United States	James Tonsgard, MD	Pediatric, Adult	NF1 NF2 Schwannomatosis
Riley Hospital for Children IU Health Physicians Riley Neurofibromatosis Clinic Indianapolis, IN United States	Steven D Rhodes M.D., PhD; and Laurence Walsh, MD	Pediatric, Adult	NF1 NF2 Schwannomatosis
Indiana University Neuroscience Center Neurology & Neuro-Oncology Indianapolis, IN United States	Steven Rhodes, MD, PhD; Laurence Walsh, MD; Lisa Smith, MD; Michael Ferguson, MD	Adult	NF1 NF2 Schwannomatosis
University of Kentucky Kentucky Neuroscience Institute Neurofibromatosis Clinic Lexington, KY United States	Donita Lightner, MD	Pediatric, Adult	NF1 NF2 Schwannomatosis
University of Louisville Weisskopf Center Louisville, KY United States	Dylan Brock, MD	Pediatric, Adult	NF1 NF2 Schwannomatosis
Louisiana State University and Children's Hospital New Orleans Children's Hospital Neurofibromatosis Clinic Metairie, LA United States	Regina Zambrano, MD	Pediatric, Adult	NF1 NF2 Schwannomatosis
Massachusetts General Hospital The Family Center for Neurofibromatosis Boston, MA United States	Scott Plotkin, MD, PhD; Justin Jordan, MD, MPH	Pediatric, Adult	NF1 NF2 Schwannomatosis
Boston Children's Hospital Multidisciplinary Neurofibromatosis Program Boston, MA United States	David Miller, MD, PhD and Nicole Ullrich, MD	Pediatric, Adult	NF1 NF2 Schwannomatosis
Tufts Medical Center Genetics Boston, MA United States	Dallas Reed, MD and Gaitanis John, MD	Pediatric, Adult	NF1 NF2 Schwannomatosis
Johns Hopkins University Johns Hopkins Comprehensive Neurofibromatosis Center Baltimore, MD United States	Jaishri Blakeley, MD	Pediatric, Adult	NF1 NF2 Schwannomatosis
National Cancer Institute Pediatric Oncology Branch Bethesda, MD United States	Brigitte Widemann, MD	Pediatric	NF1 NF2 Schwannomatosis
University of Michigan - Pediatric Genetics C.S. Mott Children's Hospital - Pediatric Genetics Ann Arbor, MI United States	Jeffrey Innis, MD, Catherine Keegan, MD	Pediatric	NF1
University of Michigan - Medical Genetics Medical Genetics Ann Arbor, MI United States	Thomas Gelehrter, MD, David Ginsburg, MD, and Jane Nicholson, MD	Adult	NF1 Schwannomatosis
Henry Ford Health System Multidisciplinary Neurofibromatosis Clinic Detroit, MI United States	Tobias Walbert, MD, PhD, MPH	Adult	NF1 NF2 Schwannomatosis
NF Clinic Grand Rapids Helen DeVos Children's Hospital Children's Outpatient Center Grand Rapids, MI United States	Daniel Fain, MD and Karen VanderLaan, MD (children); Bernard Eisenga, MD and Cynthia Hingtgen MD (adults)	Pediatric, Adult	NF1 Schwannomatosis
Corewell Health, Pediatric Neurology Corewell Health/Beaumont Health, Pediatric Neurology Royal Oak, MI United States	Heather Little, DO	Pediatric	NF1
M Health - University of Minnesota Medical Center and Masonic Children's Hospital University of Minnesota Neurofibromatosis Clinic Minneapolis, MN United States	Christopher Moertel, MD	Pediatric, Adult	NF1 NF2 Schwannomatosis
Children's Hospitals and Clinics of Minnesota Neurocutaneous Syndromes Clinic Minneapolis, MN United States	Amy Lebedoff, MD	Pediatric	NF1 NF2
Mayo Clinic Department of Clinical Genomics Rochester, MN United States	Dusica Babovic-Vuksanovic, MD	Pediatric, Adult	NF1 NF2 Schwannomatosis
Children's Mercy Hospital Comprehensive Neurofibromatosis Specialty Clinic Kansas City, MO United States	Keely Fitzgerald, MD and Dihong Zhou, MD	Pediatric, Adult	NF1 NF2 Schwannomatosis
Cardinal Glennon Children's Hospital Neurofibromatosis Clinic St. Louis, MO United States	Ali Jamal, MD	Pediatric	NF1 NF2 Schwannomatosis
Washington University/St. Louis Children's Hospital Washington University NF Clinical Program St. Louis, MO United States	David H. Gutmann, MD, PhD	Pediatric, Adult	NF1 NF2 Schwannomatosis
University of North Carolina Hospitals UNC Hospitals Neurofibromatosis Clinic Chapel Hill, NC United States	Robert S Greenwood, MD and Jamie Capal, MD	Pediatric, Adult	NF1 NF2 Schwannomatosis
Duke University Medical Center Duke Comprehensive Neurofibromatosis Clinic Durham, NC United States	David Van Mater, MD, PhD	Pediatric, Adult	NF1 NF2 Schwannomatosis
Wake Forest School of Medicine Multidisciplinary Neurofibromatosis Clinic Winston-Salem, NC United States	Roy Strowd, III, MD; Amelia Kirby, MD; David Kram, MD	Pediatric, Adult	NF1 NF2 Schwannomatosis
Rutgers New Jersey Medical School The Neurofibromatosis Center of New Jersey Newark, NJ United States	Beth A. Pletcher, MD	Pediatric, Adult	NF1 NF2 Schwannomatosis
St. Joseph's Regional Medical Center Neurofibromatosis Diagnostic and Treatment Center Paterson, NJ United States	Punita Gupta, MD	Pediatric, Adult	NF1 NF2 Schwannomatosis
University of Nevada Las Vegas School of Medicine Department of Pediatric Genetics Las Vegas, NV United States	Susanna Sorrentino, MD	Pediatric	NF1 NF2
Albany Medical Center The Melodies Center Albany, NY United States	Lauren Weintraub, MD	Pediatric, Adult	NF1 NF2 Schwannomatosis
Montefiore Medical Center/Children's Hospital at Montefiore Neurocutaneous Clinic Bronx, NY United States	Nagma Dalvi, MD	Pediatric, Adult	NF1 NF2 Schwannomatosis
John R. Oishei Children's Hospital Comprehensive Neurofibromatosis Program Buffalo, NY USA	Matthew Barth, MD	Pediatric, Adult	NF1 NF2 Schwannomatosis
NYU Langone Medical Center Comprehensive Neurofibromatosis Center at NYU Langone New York, NY United States	Kaleb Yohay, MD and Devorah Segal, MD, PhD	Pediatric, Adult	NF1 NF2 Schwannomatosis
New York Presbyterian Morgan Stanley Children's Hospital Columbia University Medical Center Neurofibromatosis Program New York, NY United States	Wendy Chung, MD, PhD and Gurcharanjeet Kaur, MD	Pediatric, Adult	NF1 NF2 Schwannomatosis
Memorial Sloan Kettering Cancer Center Pediatric Neuro-Oncology Service New York, NY United States	Matthias A. Karajannis, MD, MS	Pediatric, Adult	NF1 NF2 Schwannomatosis
Golisano Children's Hospital at University of Rochester Medical Center Comprehensive Neurofibromatosis Clinic Rochester, NY United States	Alexander Paciorkowski, MD	Pediatric, Adult	NF1 NF2 Schwannomatosis
Rochester General Hospital Boev Clinic Rochester, NY USA	Jennifer Mulbury, MD (Adult and Pediatric Neurology) and Angel Boev, MD (Neurosurgery)	Pediatric, Adult	NF1 NF2 Schwannomatosis
Cincinnati Children's Hospital Medical Center The Cincinnati Neurofibromatosis Center Cincinnati, OH United States	Peter de Blank, MD and Brittany Simpson, MD	Pediatric, Adult	NF1 NF2 Schwannomatosis
Cleveland Clinic Foundation Neurofibromatosis Clinic Cleveland, OH United States	Gary Hsich M.D.	Pediatric, Adult	NF1 NF2 Schwannomatosis
Rainbow Babies and Children's Hospital Multidisciplinary Neurocutaneous Syndromes Clinic Cleveland, OH United States	Deborah Rukin Gold, MD	Pediatric, Adult	NF1 NF2 Schwannomatosis
Nationwide Children's Hospital Neurofibromatosis Clinic Columbus, OH United States	Murugu Manickam, MD	Pediatric, Adult	NF1 NF2 Schwannomatosis
The Ohio State University Neurofibromatosis Clinic Columbus, OH United States	Oliver Adunka, MD	Pediatric, Adult	NF1 NF2 Schwannomatosis
University of Oklahoma Health Sciences Center University of Oklahoma NF Clinic Oklahoma City, OK United States	Anne Tsai, MD and Ashley Taylor, PA-C	Pediatric, Adult	NF1 NF2 Schwannomatosis
Legacy Health Neurofibromatosis Clinic Portland, OR United States	Andrea Peterson, MD	Pediatric	NF1 NF2 Schwannomatosis
Randall Children's Hospital at Legacy Emanuel Randall Children's Hospital NF Clinic Portland, OR United States	Drea Petersen, MD	Pediatric, Adult	NF1 NF2 Schwannomatosis
The Children's Hospital of Philadelphia University of Pennsylvania Neurofibromatosis Clinic Philadelphia, PA United States	Michael Fisher, MD	Pediatric, Adult	NF1 NF2 Schwannomatosis
Children's Hospital of Pittsburgh of UPMC Neurofibromatosis Clinic Pittsburgh, PA United States	Kathy Gardner, MD and Jenna Gaesser, MD	Pediatric, Adult	NF1 NF2 Schwannomatosis
Lifespan Cancer Institute Providence, RI United States	Alexander Mohler, MD	Adult	NF1 NF2 Schwannomatosis
Children's Hospital Greenville Health System BI-LO Charities Children's Cancer Center Greenville, SC United States	Nichole Bryant, MD	Pediatric	NF1 NF2
Sanford Health Pediatric Neurosurgery Sioux Falls, SD United States	Eric Trumble, MD	Pediatric, Adult	NF1 NF2 Schwannomatosis
Le Bonheur Children's Hospital Genetics Clinic Memphis, TN United States	Eniko Pivnick, MD	Pediatric	NF1 NF2 Schwannomatosis
Vanderbilt University Medical Center/Vanderbilt-Ingram Cancer Center VICC Neurofibromatosis Clinic Nashville, TN United States	Paul Moots, MD and Jennifer Brault, MD	Pediatric, Adult	NF1 NF2 Schwannomatosis
Dell Children's Hospital Neurofibromatosis Center Austin, TX United States	Manikum Moodley, MD (neurology) and Virginia Harrod, MD (neuro-oncology)	Pediatric, Adult	NF1 NF2 Schwannomatosis
UT Southwestern/Children's Health Neurofibromatosis Clinic Dallas, TX United States	Laura Klesse, MD, PhD (children) and Lu Le, MD, PhD (adults)	Pediatric, Adult	NF1 NF2 Schwannomatosis
Cook Children's Health Care System Neurofibromatosis Clinic Fort Worth, TX USA	Jeffery McGlothlin, MD	Pediatric	NF1 NF2
Texas Children's Hospital Neurofibromatosis Clinic Houston, TX United States	William Craigen, MD, PhD	Pediatric	NF1
University of Texas MD Anderson Cancer Center Neurofibromatosis Program Houston, TX United States	John Slopis, MD, MPH and Zsila Sadighi, MD	Pediatric, Adult	NF1 NF2 Schwannomatosis
Baylor College of Medicine Adult Genetics Clinic Houston, TX United States	Shweta Dhar, MD	Adult	NF1 NF2 Schwannomatosis
University of Utah Neurofibromatosis Clinic Salt Lake City, UT United States	Dave Viskochil, MD, PhD (pediatrics), Juliann Allred, MD (adult), and Vanina Taliercio, MD	Pediatric, Adult	NF1 NF2 Schwannomatosis
University of Virginia Charlottesville Neurofibromatosis Clinic Charlottesville, VA	Kathryn Xixis, MD (Management and Surveillance of Medically Complex NF patients) and Christina Peroutka, MD (Initial NF evaluation and routine NF surveillance)	Pediatric	NF1 NF2
Children's Hospital of the Kings Daughters Comprehensive Neurofibromatosis Clinic Norfolk, VA United States	Sarah Chagnon, MD	Pediatric	NF1 NF2
Children's Hospital of Richmond at VCU Hematology and Oncology Richmond, VA United States	Zhihong Joanne Wang, MD	Pediatric, Adult	NF1 NF2 Schwannomatosis
University of Vermont Medical Center Neurology Burlington, VT United States	Rodney Scott , MD	Pediatric	NF1
Seattle Children's Hospital Neurofibromatosis Clinic Seattle, WA United States	Aimee Sato, MD, Neurology and Lauren Levesque, NP	Pediatric, Adult	NF1 NF2 Schwannomatosis
University of Washington Alvord Brain Tumor Center Seattle, WA United States	Lynne P. Taylor, MD	Adult	NF1 NF2 Schwannomatosis
American Family Children's Hospital/University of Wisconsin Hospitals and Clinics Comprehensive Pediatric Neurocutaneous Disorders Clinic Madison, WI United States	Nicholas Pytel, DO	Pediatric, Adult	NF1 NF2 Schwannomatosis
Children's Wisconsin CHW Neurofibromatosis and RASopathy Center Milwaukee, WI United States	Donald Basel, MD	Pediatric	NF1 NF2 Schwannomatosis
Froedtert and Medical College of Wisconsin Cancer Center - Hope Clinic Milwaukee, WI United States	Jennifer Connelly, MD, Director and Ekokobe Fonkem	Adult	NF1 NF2 Schwannomatosis
Ascension Columbia St. Mary's Van Dyke Cancer Center Milwaukee, WI United States	Hendrikus Krouwer, MD	Adult	NF1 NF2 Schwannomatosis
WVU Medicine Children's Hospital Department of Child Neurology Morgantown, WV United States	Elizabeth McQuade, MD	Pediatric	NF1 NF2 Schwannomatosis

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