Finding a Healthcare Professional

The neurofibromatoses, including NF1, NF2 and schwannomatosis, are progressive, lifelong conditions requiring long-term follow-up and management. Finding experienced healthcare professionals to oversee the care of someone with neurofibromatosis or schwannomatosis is the most important thing you can do for yourself or your loved one.

The organizations of the NF Collective have worked together to provide a list of NF providers. This site provides you with clinics and specialists who have been identified as experienced in diagnosing and caring for individuals with NF. Although we cannot guarantee the quality of care received, we hope that this resource is of great benefit to the NF Community.

If you need help choosing a specialist from this list, finding a specialist close to you, or wish to recommend a specialist to add to our listing, please contact us.

If you are an NF provider and would like to be included in this listing, please fill out the Request Form and a member of the NF Collective will be in touch.

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Matching Healthcare Providers

Provider Clinic Director(s) Ages NF Types

University of Alabama at Birmingham
UAB NF Clinic
Birmingham, AL United States

Bruce Korf, MD, PhD; Minia Lobbous, MD; Laura Metrock, MD Pediatric, Adult NF1 NF2 Schwannomatosis

Arkansas Children’s Hospital
Neuroscience Center
Little Rock, AR United States

Gregory Sharp, MD and Elizabeth Sellars, MD Pediatric NF1 NF2 Schwannomatosis

Mayo Clinic Arizona
Clinical Genomics
Phoenix, AZ United States

Radhika Dhamija, MD, Geneticist/Neurologist; Maciej Mrugala, MD, PhD, Neurologist Pediatric, Adult NF1 NF2 Schwannomatosis

Phoenix Children's Hospital
Barrow Neurological Institute
Phoenix, AZ United States

Radhika Dhamija, MD, Geneticist and Neurologist Pediatric NF1 NF2 Schwannomatosis

Children's Hospital of Los Angeles
Comprehensive Neurofibromatosis Clinic
Los Angeles, CA United States

Tena Rosser, MD and Linda Randolph, MD Pediatric NF1 NF2 Schwannomatosis

University of California, Los Angeles - UCLA
UCLA Multidisciplinary NF2 Clinic
Los Angeles, CA United States

Phioanh Leia Nghiemphu, MD and Marco Giovannini, MD, PhD Adult NF1 NF2 Schwannomatosis

House Clinic
NF Clinic
Los Angeles, CA United States

Gregory Lekovic, MD, PhD and William Slattery III, MD Adult NF1 NF2 Schwannomatosis

Cedars-Sinai
Medical Genetics - Neurology Department
Los Angeles, CA United States

John M. Graham, MD, Medical Genetics; Jethro L. Hu, MD, Neurology; Robert M. Bernstein, MD, Orthopedics; Fataneh Majlessipour, MD, Peds/Hematology/Oncology; Pedro Sanchez, MD, Director of Medical Genetics, (310) 423-7779 for appointments and (310) 614-3071 Pediatric, Adult NF1 NF2

Children's Hospital of Orange County
CHOC Children’s Neurofibromatosis Program
Orange, CA United States

Neda Zadeh, MD, Genetics Pediatric, Adult NF1 NF2 Schwannomatosis

Stanford/Lucile Packard Children's Hospital
Stanford Children's Neurofibromatosis Clinic
Palo Alto, CA United States

Cynthia Campen, MD and David Stevenson, MD Pediatric, Adult NF1 NF2 Schwannomatosis

Lucille Packard Children's Hospital (Stanford)
LPCH Pediatric Neurosurgery
Palo Alto, CA United States

Gerald Grant, MD, Division Chief of Pediatric Neurosurgery; David S. Hong, MD, specialty pediatric spinal disorders. Pediatric NF1 NF2

Stanford Children's Health
RASopathy/Neurofibromatosis Genetic Clinic
Palo Alto, CA United States

Cynthia Campen, MD; David A. Stevenson, MD; Ellyn Farrely, Genetic Counselor Pediatric NF1 NF2 Schwannomatosis

Stanford Health Center
Stanford Neuroscience Health Center
Palo Alto, CA United States

Jacinda Sampson, Neurogeneticist; Jon Park, MD, Spine neurosurgeon; John Ratliff, MD, Spine neurosurgeon; Lawrence Shuer, MD, Neurosurgeon; Juan C. Fernandez-Miranda, MD, Neurosurgeon; Steven D. Chang, MD, Neurosurgeon; Y. Joyc Liao, MD, PhD, Neuro-ophthal Adult NF1 NF2

UC Davis Health
MIND Institute - NF/Ras Pathway Clinic
Sacramento, CA United States

Katherine Rauen, MD, PhD Pediatric, Adult NF1 NF2 Schwannomatosis

UCSF Benioff Children's Hospital
UCSF Neurofibromatosis Program
San Francisco, CA United States

Alyssa Reddy, MD Pediatric NF1 NF2 Schwannomatosis

Children's Hospital Colorado
Neurofibromatosis Program
Aurora, CO United States

Jennifer Janusz, PsyD, ABPP-Cn Pediatric, Adult NF1 NF2 Schwannomatosis

Connecticut Children's Medical Center
Neurofibromatosis Clinic
Farmington, CT United States

Francis DiMario Jr., MD Pediatric NF1 NF2 Schwannomatosis

Children’s National Hospital
Jennifer and Daniel Gilbert NF Institute
Washington, DC United States

Miriam Bornhorst, MD and Roger Packer, MD Pediatric, Adult NF1 NF2

Nemours/Alfred I. duPont Hospital for Children
Nemours RASopathy & Neurofibromatosis Clinic
Wilmington, DE United States

Karen Gripp, MD and Gurcharanjeet Kaur, MD Pediatric NF1 NF2 Schwannomatosis

NeuroMedicine Hospital
UF Neurofibromatosis and Neurocutaneous Center
Gainesville, FL United States

Hans Shuhaiber, MD and Ashley Ghiaseddin, MD Pediatric, Adult NF1 NF2 Schwannomatosis

Nicklaus Children’s Hospital
Neurofibromatosis Center
Miami, FL United States

Mislen Bauer, MD Pediatric, Adult NF1 NF2 Schwannomatosis

AdventHealth for Children
Neurofibromatosis Clinic
Orlando, FL United States

Fouad Hajjar, MD Pediatric NF1 NF2

Johns Hopkins All Children’s Hospital
Neurocutaneous Disorders Clinic
St. Petersburg, FL United States

Stacie Stapleton, MD and Melissa Crenshaw, MD Pediatric, Adult NF1 NF2 Schwannomatosis

Moffitt Cancer Center
Moffitt Genetic Neuro-oncology Clinic
Tampa, FL United States

Xia Wang, MD, PhD and Sepideh Mokhtari, MD Adult NF1 NF2 Schwannomatosis

Emory University/Children's Healthcare of Atlanta
Neurofibromatosis Clinic
Atlanta, GA United States

David Wolf, MD, PhD Pediatric NF1 NF2 Schwannomatosis

University of Iowa Hospitals and Clinics
Neurofibromatosis Clinic
Iowa City, IA United States

Alpa Sidhu, MD, PhD (Director) and Samantha Schutt, ARNP (Nurse Practitioner) Pediatric, Adult NF1 NF2 Schwannomatosis

Ann and Robert H. Lurie Children’s Hospital of Chicago
Neurofibromatosis Clinic
Chicago, IL United States

Robert Listernick, MD and Joel Charrow , MD Pediatric NF1 NF2 Schwannomatosis

University of Chicago - Chicago
Neurofibromatosis Program
Chicago, IL United States

James Tonsgard, MD Pediatric, Adult NF1 NF2 Schwannomatosis

University of Illinois in Chicago
Neurofibromatosis Clinic
Chicago, IL United States

Nikolas Mata-Machado, MD (children) and Stefania Maraka, MD (adults) Pediatric, Adult NF1 NF2

Malnati Brain Tumor Institute-Northwestern Memorial Hospital
Neuro Oncology & Neurology
Chicago, IL UNITED STATES

Karan Dixit, MD Adult NF1 NF2 Schwannomatosis

University of Chicago - Orland Park
Neurofibromatosis Program
Orland Park, IL United States

James Tonsgard, MD Pediatric, Adult NF1 NF2 Schwannomatosis

Riley Hospital for Children IU Health Physicians
Riley Neurofibromatosis Clinic
Indianapolis, IN United States

Lisa Smith, MD and Laurence Walsh, MD Pediatric NF1 NF2 Schwannomatosis

Indiana University Neuroscience Center
Neurology & Neuro-Oncology
Indianapolis, IN United States

Kathryn Nevel, MD Adult NF1 NF2 Schwannomatosis

University of Kentucky
Kentucky Neuroscience Institute Neurofibromatosis Clinic
Lexington, KY United States

Donita Lightner, MD Pediatric, Adult NF1 NF2 Schwannomatosis

University of Louisville
Weisskopf Center
Louisville, KY United States

Alexander Asamoah, MD, PhD Pediatric, Adult NF1 NF2 Schwannomatosis

Louisiana State University and Children's Hospital New Orleans
Children's Hospital Neurofibromatosis Clinic
New Orleans, LA United States

Regina Zambrano, MD Pediatric, Adult NF1 NF2 Schwannomatosis

Massachusetts General Hospital
The Family Center for Neurofibromatosis
Boston, MA United States

Scott Plotkin, MD, PhD; Justin Jordan, MD, MPH Pediatric, Adult NF1 NF2 Schwannomatosis

Boston Children's Hospital
Multidisciplinary Neurofibromatosis Program
Boston, MA United States

David Miller, MD, PhD and Nicole Ullrich, MD Pediatric NF1 NF2 Schwannomatosis

Tufts Medical Center
Genetics
Boston, MA United States

Dallas Reed, MD and Gaitanis John, MD Pediatric, Adult NF1 NF2 Schwannomatosis

Johns Hopkins University
Johns Hopkins Comprehensive Neurofibromatosis Center
Baltimore, MD United States

Jaishri Blakeley, MD Pediatric, Adult NF1 NF2 Schwannomatosis

National Cancer Institute
Pediatric Oncology Branch
Bethesda, MD United States

Brigitte Widemann, MD Pediatric NF1 NF2 Schwannomatosis

University of Michigan - Pediatric Genetics
C.S. Mott Children's Hospital - Pediatric Genetics
Ann Arbor, MI United States

Jeffrey Innis, MD, Catherine Keegan, MD Pediatric NF1

University of Michigan - Medical Genetics
Medical Genetics
Ann Arbor, MI United States

Thomas Gelehrter, MD, David Ginsburg, MD, and Jane Nicholson, MD Adult NF1 Schwannomatosis

Henry Ford Health System
Multidisciplinary Neurofibromatosis Clinic
Detroit, MI United States

Tobias Walbert, MD, PhD, MPH Adult NF1 NF2 Schwannomatosis

NF Clinic Grand Rapids
Helen DeVos Children's Hospital Children's Outpatient Center
Grand Rapids, MI United States

Daniel Fain, MD and Karen VanderLaan, MD (children); Bernard Eisenga, MD and Cynthia Hingtgen MD (adults) Pediatric, Adult NF1 Schwannomatosis

Beaumont Children's Hospital, Pediatric Neurology
Beaumont Children's Hospital, Pediatric Neurology
Royal Oak, MI United States

Eileen McCormick, DO Pediatric NF1

M Health - University of Minnesota Medical Center and Masonic Children's Hospital
University of Minnesota Neurofibromatosis Clinic
Minneapolis, MN United States

Christopher Moertel, MD Pediatric, Adult NF1 NF2 Schwannomatosis

Children's Hospitals and Clinics of Minnesota
Neurocutaneous Syndromes Clinic
Minneapolis, MN United States

Marcelo Vargas, MD and Elizabeth Siqveland, APRN-CNP Pediatric NF1 NF2

Mayo Clinic
Department of Clinical Genomics
Rochester, MN United States

Dusica Babovic-Vuksanovic, MD Pediatric, Adult NF1 NF2 Schwannomatosis

Children's Mercy Hospital
Comprehensive Neurofibromatosis Specialty Clinic
Kansas City, MO United States

Keely Fitzgerald, MD and Dihong Zhou, MD Pediatric NF1 NF2 Schwannomatosis

Cardinal Glennon Children's Hospital
Neurofibromatosis Clinic
St. Louis, MO United States

Ali Jamal, MD and Thomas Geller, MD Pediatric NF1 NF2 Schwannomatosis

Washington University/St. Louis Children's Hospital
Washington University NF Clinical Program
St. Louis, MO United States

David H. Gutmann, MD, PhD and Stephanie Morris, MD Pediatric, Adult NF1 NF2 Schwannomatosis

University of North Carolina Hospitals
UNC Hospitals Neurofibromatosis Clinic
Chapel Hill, NC United States

Robert S Greenwood, MD and Timothy Gershon, MD, PhD Pediatric, Adult NF1 NF2 Schwannomatosis

Duke University Medical Center
Duke Comprehensive Neurofibromatosis Clinic
Durham, NC United States

David Van Mater, MD, PhD and Kristin Schroeder, MD, MPH Pediatric, Adult NF1 NF2 Schwannomatosis

Wake Forest School of Medicine
Multidisciplinary Neurofibromatosis Clinic
Winston-Salem, NC United States

Roy Strowd, III, MD; Amelia Kirby, MD; David Kram, MD Pediatric, Adult NF1 NF2 Schwannomatosis

Rutgers New Jersey Medical School
The Neurofibromatosis Center of New Jersey
Newark, NJ United States

Beth A. Pletcher, MD Pediatric, Adult NF1 NF2 Schwannomatosis

St. Joseph's Regional Medical Center
Neurofibromatosis Diagnostic and Treatment Center
Paterson, NJ United States

Punita Gupta, MD and Romana Kulikova, MD Pediatric, Adult NF1 NF2 Schwannomatosis

University of Nevada Las Vegas School of Medicine
Department of Pediatric Genetics
Las Vegas, NV United States

Susanna Sorrentino, MD Pediatric NF1 NF2

Albany Medical Center
The Melodies Center
Albany, NY United States

Lauren Weintraub, MD Pediatric, Adult NF1 NF2 Schwannomatosis

Montefiore Medical Center/Children's Hospital at Montefiore
Neurocutaneous Clinic
Bronx, NY United States

Nagma Dalvi, MD Pediatric, Adult NF1 NF2 Schwannomatosis

John R. Oishei Children's Hospital
Comprehensive Neurofibromatosis Program
Buffalo, NY USA

Matthew Barth, MD Pediatric NF1 NF2 Schwannomatosis

NYU Langone Medical Center
Comprehensive Neurofibromatosis Center at NYU Langone
New York, NY United States

Kaleb Yohay, MD Pediatric, Adult NF1 NF2 Schwannomatosis

New York Presbyterian Morgan Stanley Children's Hospital Columbia University Medical Center
Neurofibromatosis Program
New York, NY United States

Wendy Chung, MD, PhD Pediatric, Adult NF1 NF2 Schwannomatosis

Memorial Sloan Kettering Cancer Center
Pediatric Neuro-Oncology Service
New York, NY United States

Matthias A. Karajannis, MD, MS Pediatric, Adult NF1 NF2 Schwannomatosis

Golisano Children's Hospital at University of Rochester Medical Center
Comprehensive Neurofibromatosis Clinic
Rochester, NY United States

Alexander Paciorkowski, MD Pediatric, Adult NF1 NF2 Schwannomatosis

Rochester General Hospital
Boev Clinic
Rochester, NY USA

Jennifer Mulbury, MD (Adult and Pediatric Neurology) and Angel Boev, MD (Neurosurgery) Pediatric, Adult NF1 NF2 Schwannomatosis

Cincinnati Children's Hospital Medical Center
The Cincinnati Neurofibromatosis Center
Cincinnati, OH United States

Elizabeth Schorry, MD and Carlos Prada, MD Pediatric, Adult NF1 NF2 Schwannomatosis

Cleveland Clinic Foundation
Neurofibromatosis Clinic
Cleveland, OH United States

David Rothner, MD Pediatric, Adult NF1 NF2 Schwannomatosis

Rainbow Babies and Children's Hospital
Multidisciplinary Neurocutaneous Syndromes Clinic
Cleveland, OH United States

Deborah Rukin Gold, MD Pediatric, Adult NF1 NF2 Schwannomatosis

Nationwide Children's Hospital
Neurofibromatosis Clinic
Columbus, OH United States

Murugu Manickam, MD Pediatric, Adult NF1 NF2 Schwannomatosis

The Ohio State University
Neurofibromatosis Clinic
Columbus, OH United States

Oliver Adunka, MD Pediatric, Adult NF1 NF2 Schwannomatosis

University of Oklahoma Health Sciences Center
University of Oklahoma NF Clinic
Oklahoma City, OK United States

Anne Tsai, MD and Ashley Taylor, PA-C Pediatric, Adult NF1 NF2 Schwannomatosis

Legacy Health
Neurofibromatosis Clinic
Portland, OR United States

Andrea Peterson, MD Pediatric NF1 NF2 Schwannomatosis

Randall Children's Hospital at Legacy Emanuel
Randall Children's Hospital NF Clinic
Portland, OR United States

Drea Petersen, MD Pediatric, Adult NF1 NF2 Schwannomatosis

The Children's Hospital of Philadelphia
University of Pennsylvania Neurofibromatosis Clinic
Philadelphia, PA United States

Michael Fisher, MD Pediatric, Adult NF1 NF2 Schwannomatosis

Children's Hospital of Pittsburgh of UPMC
Neurofibromatosis Clinic
Pittsburgh, PA United States

Kathy Gardner, MD and Jenna Gaesser, MD Pediatric, Adult NF1 NF2 Schwannomatosis

Lifespan Cancer Institute

Providence, RI United States

Alexander Mohler, MD Adult NF1 NF2 Schwannomatosis

Children's Hospital Greenville Health System
BI-LO Charities Children's Cancer Center
Greenville, SC United States

Nichole Bryant, MD Pediatric NF1 NF2

Sanford Health
Pediatric Neurosurgery
Sioux Falls, SD United States

Eric Trumble, MD Pediatric, Adult NF1 NF2 Schwannomatosis

Le Bonheur Children's Hospital
Genetics Clinic
Memphis, TN United States

Eniko Pivnick, MD Pediatric NF1 NF2 Schwannomatosis

Vanderbilt University Medical Center/Vanderbilt-Ingram Cancer Center
VICC Neurofibromatosis Clinic
Nashville, TN United States

Paul Moots, MD and Jennifer Brault, MD Pediatric, Adult NF1 NF2 Schwannomatosis

Dell Children's Hospital
Neurofibromatosis Center
Austin, TX United States

Manikum Moodley, MD (neurology) and Virginia Harrod, MD (neuro-oncology) Pediatric NF1 NF2 Schwannomatosis

UT Southwestern/Children's Health
Neurofibromatosis Clinic
Dallas, TX United States

Laura Klesse, MD, PhD (children) and Lu Le, MD, PhD (adults) Pediatric, Adult NF1 NF2 Schwannomatosis

Cook Children's Health Care System
Neurofibromatosis Clinic
Fort Worth, TX USA

Jeffery McGlothlin, MD Pediatric NF1 NF2

Texas Children's Hospital
Neurofibromatosis Clinic
Houston, TX United States

William Craigen, MD, PhD Pediatric NF1

University of Texas MD Anderson Cancer Center
Neurofibromatosis Program
Houston, TX United States

John Slopis, MD, MPH and Zsila Sadighi, MD Pediatric, Adult NF1 NF2 Schwannomatosis

Baylor College of Medicine
Adult Genetics Clinic
Houston, TX United States

Shweta Dhar, MD Adult NF1 NF2 Schwannomatosis

University of Utah
Neurofibromatosis Clinic
Salt Lake City, UT United States

Dave Viskochil, MD, PhD (pediatrics) and Juliann Allred, MD (adult) Pediatric, Adult NF1 NF2 Schwannomatosis

Children's Hospital of the Kings Daughters
Comprehensive Neurofibromatosis Clinic
Norfolk, VA United States

Sarah Chagnon, MD Pediatric NF1 NF2

Children's Hospital of Richmond at VCU
Hematology and Oncology
Richmond, VA United States

Zhihong Joanne Wang, MD, PhD Pediatric NF1 NF2 Schwannomatosis

University of Vermont Medical Center
Neurology
Burlington, VT United States

Rodney Scott , MD Pediatric NF1

Seattle Children's Hospital
Neurofibromatosis Clinic
Seattle, WA United States

Aimee Sato, MD, Neurology Pediatric NF1 NF2 Schwannomatosis

University of Washington
Alvord Brain Tumor Center
Seattle, WA United States

Lynne P. Taylor, MD Adult NF1 NF2 Schwannomatosis

Swedish Medical Center
Swedish Neuroscience Institute
Seattle, WA United States

John Henson, MD Adult NF1 NF2 Schwannomatosis

American Family Children's Hospital/University of Wisconsin Hospitals and Clinics
Comprehensive Pediatric Neurocutaneous Disorders Clinic
Madison, WI United States

Diane Puccetti, MD Pediatric NF1 NF2 Schwannomatosis

Children's Wisconsin
CHW Neurofibromatosis and RASopathy Center
Milwaukee, WI United States

Donald Basel, MD (genetics) and Dawn Siegel, MD (dermatology) Pediatric NF1 NF2 Schwannomatosis

Froedtert and Medical College of Wisconsin
Cancer Center - Hope Clinic
Milwaukee, WI United States

Fernando Santos Pinheiro, MD and Jennifer Connelly, MD Adult NF1 NF2 Schwannomatosis

Ascension Columbia St. Mary's
Van Dyke Cancer Center
Milwaukee, WI United States

Hendrikus Krouwer, MD Adult NF1 NF2 Schwannomatosis

WVU Medicine Children's Hospital
Department of Child Neurology
Morgantown, WV United States

Elizabeth McQuade, MD Pediatric NF1 NF2 Schwannomatosis